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Many women with endometriosis have found that talking to others with the disease has helped them learn from their experiences, understand treatments and coping methods, and subsequently get a better understanding of endometriosis. There are patient support groups all over the world and by working together these support groups have become a powerful and effective force, working closely with doctors and scientists to further awareness and encourage research into endometriosis in the hopes of finding a cure and more effective ways of treating this debilitating disease.
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Endometriosis is one of the commonest causes of pelvic pain in young women. Endometrium is the lining of the womb that is shed during a period. In endometriosis this tissue is found outside the uterus, mainly in the pelvis, where it grows under the influence of the hormone oestrogen. The exact cause for this abnormal deposition of endometrium is not known. It is now believed that there may be multiple causes rather than a single cause. During the time of a period, these tissues also bleed leading to inflammatory changes around them. This causes pain and adjacent tissues to stick to each other.
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